Some days are truly harder than others. Yesterday I held Lyra for a good portion of the day. She was cuddly and sleepy and it was nice to have that time with her while we waited for surgery. This morning is tough though. Lyra is on the same size bed I slept on in the hospital, but she is only 7 pounds. Her tiny little body is almost hard to spot since the sheets are white and she is wrapped up in white blankets with white tape covering most of her exposed face. I can’t pick her up and I am not even sure how much I can touch her.

Surgery yesterday went well. They were able to trim the extra tissue and open her airway up. However, she did need help with her breathing during and after the procedure. This morning she is still on a ventilator. That is the reason there are so many monitors hooked up to her and why I can’t hold her. During surgery they also identified an additional abnormality that may be impacting her breathing. Today she is likely having an MRI to try to determine what is causing the problem. For now, I will just sit in the rocking chair watch the monitors.