The results are in from the Upper GI test we had done yesterday and the provide us with some important answers as to why Lyra has so much trouble keeping food down. Unfortunately, it also means that she is going to need more surgery. We knew that she needed surgery to have the G-tube placed. However, the Upper GI has revealed that she also has a narrowing of her upper small intestine (duodenum). The condition is called duodenal stenosis and hers requires surgery to fix. At this stage, I don’t have an exact date for when surgery will happen. We are hoping for September 14th. I don’t have more information to give, but I have provided some links below with additional information about the condition:
- Children’s National Hospital: http://childrensnational.org/choose-childrens/conditions-and-treatments/fetal-carepregnancy/duodenal-atresia-or-stenosis-in-infants
- National Organization for Rare Disorders (NORD): https://rarediseases.org/rare-diseases/duodenal-atresia-or-stenosis/
One thought on “More Answers…. More Surgery”
Love you Jaime and we are thinking of all the time. You are all being so strong with the care of this special little lady. Give Lyra an extra hug from G an A in Cal.