A Love Letter to Nurses

A Love Letter to Nurses

This is for the 30ish (give or take a few) nurses who have helped take care of Lra up to this point.

Dear Nurses,

I love you and thank you. Now, don’t get me wrong, the doctors are great. But you were the one who rocked my two-day-old for hours in the middle of the night when I couldn’t be there. You are the one who stood vigil by her side after a scary day at another hospital. You were the one who showed me how to change her diaper without making a total mess. You were the people to show my husband and I 10 ways to feed and burp her. You were the ones who hugged me when I melted down by her bedside. You were the ones who made sure I ate and drank…. and sometimes slept. You were the ones who helped me at 2 am clean her off…. and me off….. after she puked for the 20th time that day. You were the one who stood up for me when doctors didn’t believe me. You were the one who allowed to me sleep peacefully when I couldn’t be there. You were the one who fed her patiently when I felt so discouraged. You were the one who made sure I knew how to do CPR and how to feed my baby with a tube. You were the one who listened to me when I knew something wasn’t right. You were the one up all night with her while I slept a few feet away. You were the one to put hearts on her cheeks after she had surgery. You were the one to change her diaper when I couldn’t due to tubes. You were the one who diligently checked her vital signs around the clock. You have done all of this, and a thousand other things I can not name. I have watched you take tender loving care of daughter. For that, I love you.

Love,

Jaime and Mark

Learning to Thrive

Learning to Thrive

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On May 11th my husband and I welcomed a full term baby girl into the world. While everyone says that being a first time parent never goes as planned or as expected, no one could have prepared us for the journey we have been on. ┬áDespite being full term, Lyra has failed to thrive, and we are still trying to figure out why. Yesterday she turned one month old. Instead of taking silly pictures with a “1 Month” sticker, I was taking her to the ER and later admitting her to Children’s Hospital for the second time. I still look a picture, but it was a quick shot in her car seat before running out the door. In her short month in this world, she has been in the ER 3 times, taken 2 ambulance rides, been in the NICU twice, and now is in the PICU. This blog is our journey, my way of updating friends/family, and my way of coping. My little one is a fighter. Now, we just have to teach her how to thrive.